Lillie Update...

Poppy reads Lillie a book.


Lillie without her goggles and velcro!!!

Poppy showing how big his hand is compared to her.

Big brother Draven is finally better and got to hold her.

Draven and Lillie

Mom, Draven and Lillie

Bug eyed Lillie ready to eat.

Lillie with her Aunt Jenn.

Extreme Home Makeover - Incubator edition.

Mom and Poppy with Lillie.

Mom and Lillie

Last night was hard, today was much better. We went for our 8:30 feeding last night and we just didn't want to leave. I made it to the waiting room and broke down. I didn't want to go without her. I don't know if it will get easier or harder as time passes. The thought of her being in the hospital for another month just breaks my heart. It is such a slow process, but necessary. Today we went up for our 2:30 and got our daily updates. She gained 5 grams and was up to 19cc's of milk. She was so tired during the feeding and never woke up. We got her feeding down in about 12 minutes. That is about 11 minutes slower than her normal feeding. We would like to see her awake, but we know sleep is what she needs. Tonight at her 8:30 feeding they had already bathed and weighed her. She had a pretty full diaper right before her weighing, she lost 3 grams. That was a downer, but the nurse thinks that it was all in the timing. I asked her if she will increase her weight at a faster rate as they increase her milk intake, she said yes. She also said that in a week she wouldn't be surprised if she was gaining 1/2 ounce a day. Yes, an ounce not a gram!!! Still at that rate it would take her 1 month to get over 4 pounds. I can't wait that long. They increased her feeding to 21cc's at the 8:30. She was wide eyed and anxious to eat. She took all of it in less than 5 minutes. Draven held her for a little while and she fell asleep. Chris kangarooed the rest of the evening and read her Runaway Bunny. She slept through it all. When Chris was finished she felt warm. We both are thinking she is starting to regulate her own temperature. That is encouraging. I am thinking about driving against doctors orders. I hate relying on others. Tomorrow I will try to make it to the 11:30 then return for the 8:30 as a family. I know her doctor will be there during the day and I want to get his input on her growth and how long before she comes home. That is a question that no one can answer, but I still have to ask.

Oh, I almost forgot the big news. The got her off her billy light (for jaundice) so she no longer has to wear her goggles and Velcro. That also means we can keep her out a little longer. Chris had her out for over an hour kangarooing today!